Patients' charter for TB care

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The Patients’ Charter for Tuberculosis Care (the Charter) outlines the rights and responsibilities of people with TB. It empowers people affected by TB and their communities through this knowledge. Initiated and developed by persons affected by TB from around the world, the Charter makes the relationship with healthcare providers a mutually beneficial one.

The Charter sets out ways in which people affected by TB, the community, health providers (both private and public), and governments can work as partners in a positive and open relationship with a view to improve TB care and enhance the effectiveness of the healthcare process.

It allows for all parties to be held more accountable to each other, fostering mutual interaction and a positive partnership.

Principles of the Patients’ Charter for TB Care

The charter practices the principle of Greater Involvement of People with TB (GIPT).
This affirms that the empowerment of people with the disease is the catalyst for effective collaboration with health providers and authorities and is essential to victory in the fight to end TB.

Parts of the Patients’ Charter for TB Care

There are two main parts in the patients’ charter for TB care which cover:

Patients’ rights
Patients’ responsibilities

These parts are further delineated in Tables 1 and 2 below.

Table 1: Patient's Rights According to the Patient's Charter for TB Care
Rights	Explanation of rights: You, as the patient, have the right to:
Care	Free and equitable TB quality care meeting the International Standards of Tuberculosis Care (ISTC) Benefit from community-care programmes
Dignity	Be treated with respect and dignity Social support of the family, community and national programmes
Information	Information about available care services — be informed about condition and treatment, know drug names, dosage and side-effects Access your medical records in the local language Have peer support and voluntary counselling
Choice	A second medical opinion, with access to medical records Refuse surgery if drug treatment is at all possible Refuse to participate in research studies
Confidence	Have your privacy, culture and religious beliefs respected Keep your health conditions confidential Care in facilities that practice effective infection control
Justice	File a complaint about care, and have a response Appeal unjust decisions to a higher authority Vote for accountable local and national patient representatives
Organization	Join or organise peer support groups, clubs and Non-governmental Organisations (NGOs) Participate in policy-making in TB programmes
Security	Job security, from diagnosis through to cure Food coupons or supplements, if required Access to quality-assured drugs and diagnostics

Table 2: Patients' Responsibilities According to the Patients' Charter for TB Care
Responsibilities	Explanation of responsibilities: You, the patient, have the responsibility to:
Share information	Inform healthcare staff all about your condition Tell staff about your contacts with family, friends, etc. Inform family and friends and share your TB knowledge
Contribute to community health	Encourage others to be tested for TB if they show symptoms Be considerate of care providers and other patients Assist family and neighbours to complete treatment
Follow treatment	Follow the prescribed plan of treatment Tell staff of any difficulties with treatment
Solidarity	Show solidarity with all other patients Empower yourself and your community Join the fight against TB in your country

Resources

Assessment

Question	Answer 1	Answer 2	Answer 3	Answer 4	Correct answer	Correct explanation	Page id	Part of Pre-test	Part of Post-test
According to the Patients' Charter for TB Care, it is not the patient’s responsibility to support other patients.	True	False			2	According to the Patients' Charter for TB Care, patients have a responsibility to support other patients, show solidarity and empower their communities.		Yes	Yes

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Patients' charter for TB care

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